This is great, thank you for writing about it! My daughter received a heart transplant in January 2020, on her 4th birthday. She was born with hypoplastic left heart syndrome (HLHS) which basically means she had half of a functioning heart. There is a series of surgeries that must be completed during the first few years of life in those cases to restructure the heart to get by, with the first one being within the first week or so after birth and the second one around 6 months old. She got through the first two but the prep for the 3rd failed so she was placed on the transplant list. We advocate strongly for donors as well and are forever thankful for the gift of life they gave my daughter ♥️
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Gosh, it must have been a miracle finding a suitable heart, but how traumatic it must have been for you and your wife!
I never realized just how many people one could help by registering for organ donation, that's why it's so important to make more people aware of it.
Wishing your daughter good health @obiwanpicone 🙏🏻
Yes, it is so important, but also one of those things we don't often think about prior to being faced with it. Not a comfortable thing to think about or discuss. The trauma for me and my wife is very real. Thankfully, my daughter was too young to remember most of it all. She does have her next catheter and heart biopsy next month. They do this annually. And she is doing well a this time, so that is all we can ask for. As I get more used to Ecency, I may write more about our experiences if it will potentially help others. I see how many your post reached on organ donations, so her story could be impactful. Thanks again for sharing and wish you the best this holiday season @lizelle