The hardest part of living with chronic pain and fatigue: is it the daily chore of trying to function in spite of everything, or the invisibility of the disability?
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The hardest part of living with chronic pain and fatigue: is it the daily chore of trying to function in spite of everything, or the invisibility of the disability?
Invisibility of the disability, doctors telling you when you are 12 there is nothing wrong, consultant doctors at hospital telling your mother her son is lying. Being called a liar for 6 years through your teenage years because there is nothing wrong you are making it up.
Funny the school teachers knew there was something wrong, yet so called doctors thought I was a liar. Only when I was 19 did another doctor we went to, realised there was a link between my father and I, and then is when he got diagnosed with me.
You can condition your mind to cope with pain 24/4 but the invisibility of a chronic disability gets to me.
I am so sorry about this. I a glad you were vindicated. I hope the diagnosis wasn't too late.
Thanks for that. It is what it is, there is no cure but at least I know what is wrong lol.
Ah, yes, and the assumptions it's just laziness and other moral failings because it doesn't LOOK like anything's wrong. Or, "you're not in bed with a fever, so you can't be THAT sick!"
oh yes laziness 🤣
It's the should be the daily chore of trying to function in spite of everything because that's living in denial
I don't think it's denial per se. I know damn well I hurt and I'm tired, and I'm not pretending otherwise. I just can't give up because of it.