Foto propia editada con GNU y Postimages
SELF-CARE FOR THE CAREGIVER OF TERMINALLY ILL PATIENTS
Greetings HIVE Community, in this opportunity the content of this post will deal with the self-care that the person who takes care daily and at home of a loved one who suffers a terminal illness should do, in order to reduce the impact on their health due to the wear and tear involved in dealing with this type of trauma.
This week a friend asked me about the psychological self-care that a person caring for a terminally ill family member should have. I felt this question as a request for help on what to do in such an overwhelming and exhausting situation as caring for a loved one in his or her last moments of life.
This circumstance becomes traumatic, both for the person suffering from a terminal illness that generates a lot of pain and discomfort, as well as for the family member, who sees how the living conditions of their loved one are diminishing, and the fact of being constantly attentive to provide help to alleviate these pains experienced by their loved one. In addition to having to run from one place to another in search of medical treatments or to take this being to the different tests necessary to monitor the evolution of the disease.
Foto propia editada con GNU y Postimages
All this is made more complex by the economic crisis we live in Venezuela together with the situation of the pandemic, which has made it a way of the cross to get medicines, to find money to buy these medicines, to live the onslaught of merchants and fraudsters who take advantage of this need to profit and countless things to do to provide a little welfare to your loved one.
On the other hand, dealing with the increasingly demanding care demands of this being, who imposes the conditions under which he wants to be cared for, who does not want anyone to see him in this state, who feels that his life is slipping away, together with the burden of the daily household chores, makes this situation deteriorate the caregiver's health, especially when there is no family network or relatives to provide sufficient social support.
Talking to this friend, and feeling the pain in her voice, I see the psychological impact that this whole situation is having on her health.
What to do about all this?
At first, in situations like this, it is necessary to seek, articulate, a social support network that can contribute to take turns in the different actions involved in caring for this person: personal hygiene, preparing and giving food to this person, being aware of medications and treatments, ensuring sleep and different postures both in bed and in the bathroom, among other aspects. On the other hand, there is the attention to the demands of the home.
It is possible that the person suffering from the terminal illness does not want anyone else to see him/her or attend to him/her, forcing, indirectly or at least without being fully aware of this, the caregiver to isolate him/herself and focus exclusively on the care of the loved one, and preventing others from helping him/her. This action, far from contributing to the patient's well-being, harms him/her, as it rapidly increases the caregiver's physical and psychological wear and tear. In view of this, it is necessary for the caregiver to talk to the patient and warn him/her of what may happen if he/she also becomes ill.
Secondly, it is necessary for the caregiver to have a space where he/she can release all this burden in order to prevent further damage to his/her health. This space does not necessarily imply a specific place, but it can be a walk, a chocolate, if this is not contraindicated, to counteract the depression caused by the situation he/she is living, or simply a place where he/she can sleep or at least rest. This also means being able to share with other people that allows you to abstract a little of the situation of affectation of your loved one.
Caring for a loved one with a terminal illness does not necessarily have a predetermined time for how long the illness lasts, so that the prolongation of the illness over time will affect the caregiver's health. The caregiver may reach the point of falling into bed or unconsciously develop a desire to end this unfortunate circumstance. If this unconscious desire is fulfilled when it has taken shape, it can generate a later feeling of guilt, which can lead to a depressive disorder if it is installed in the psyche or a psychosomatic disease if it is installed in the body.

Self-care implies carrying out actions such as those listed above that seek to prevent damage to the caregiver's health, which, although not exhaustive, due to the characteristics of this content space, are the basis for starting the task of dealing with the impact that caring for a loved one suffering from a terminal illness generates.
Si quieren ahondar en el tema pueden accesar a este documento El cuidador y el enfermo en el final de la vida.1
If you want to go deeper into the subject you can access this document The caregiver and the patient at the end of life.1
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Saludos! compartes una información bastante interesante.
Saludos @suzaku8, feliz noche, gracias por leer el post y por tu opinión.
esta información es valiosa para mí , gracias por compartir
Saludos @letza me alegra que sea útil esa información. Gracias por haber leído el post.