Oh my... you don't even know what kind of disease you have? Fuck... I'm so sorry. I truly can't imagine living without insurance. I have so many different pills that it would be impossible for me to pay for them alone. Every month, it costs more than 10,000 euros, plus also my biological injection, which costs 25,000 euros. 😔 It's unfair that people can't get the right treatment. That's why I can relate, and that's why I want to help. But then someone comes along who takes advantage of the illness to steal money. There are so many people who genuinely need help. What can you even do now? Nothing? How will you know what kind of illness you have?!
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They say that it takes, on average, over a decade to get autoimmune disease diagnosed here, and I am over the decade mark. You get blown off by doctors who tell you "oh you just have anxiety, it's all in your head" as you're literally falling apart. They won't even run tests. That happened to me several times (to be clear: I know anxiety is a real problem for people, but I don't have anxiety. I even saw a therapist weekly for a year and a half who agreed I did not have anxiety). So you're wasting years fighting the people who are supposed to help you, as you get worse and worse. And now, I have no insurance, so I just live with it. Honestly, not to be morbid, but I hope it just takes me out in my sleep one day, because this isn't a life anymore. I'm 47 but I live more like I'm 87. I don't have the energy to fight the people who are supposed to help. I don't have the energy to live a normal life.
So yanno, unless the US has a whole revolution and we finally get universal healthcare, or I win the lottery (that I don't even play, lol) ...nothing. Pretty much.
I truly don't understand how this is even allowed. Oh yeah… it's easier to tell people they're depressed or have anxiety… but like you said… people know if it's anxiety or something else. If you were never diagnosed with a specific disease, who told you you have an autoimmune disease? I mean… I also knew long before my doctors did what's wrong with me, even when they told me it's just some virus, but over time, they finally gave me the same diagnosis. That's why I also moved to Austria because the treatment here is better, and they truly care for their patients… I know you don't want to sound morbid, and I’m not the person to tell you that you can't think so, because I was down for a long time… so the only thing I can say is… fight… or even move away… the system isn't worth risking your life… they don't care, but the people around you do!
It's the best guess (and why I was finally getting referred to a rheumatologist, instead of an allergist), but yeah, I don't officially know. But I have, in addition to the vague pile of symptoms like pain, brain fog, exhaustion, heart racing, etc., massive tons of allergies that developed (and keep getting worse) in adulthood, eczema that didn't start until my 40s, vitiligo that didn't start spreading until my 30s ...all of these are your immune system attacking things it doesn't need to. The allergist was just treating them symptomatically, like, here's a cream for that eczema, avoid eating the food allergies, etc. and I had to be the one like, don't you think these are all telling a larger story, including all my other symptoms? And they were like, oh, I don't deal with autoimmune, you have to see a rheumatologist. And I was like ...so can you give me a referral? And they were like, "Oh, yeah. Ok." 😩
Doctors act like if you suggest it yourself, you must be a hypochondriac, but if you don't suggest it yourself, they never will. My primary doc actually did check me for MS because I have an aunt with MS, but when that test came back clear, she didn't look for anything else.