Part 9/11:
Addressing their own feelings, they acknowledge the mix of relief, anxiety, and hope that comes with having a concrete diagnosis. They are aware of the possibilities for future treatment and research, but also of the uncertainty regarding long-term outcomes.
Future Planning and Research
As Jaden approaches adulthood, discussions center on how to ensure he receives appropriate care, including transitioning to adult healthcare providers. This involves collaboration with specialists in adult neurology and genetics, and ensuring his medical records are comprehensive for seamless care.