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As Joy became a public figure in the fight against Parkinson's, she faced an ethical dilemma. Would she disclose her ability to those she meets, knowing they might not yet realize they are at risk for diseases like Alzheimer’s? Joy ultimately chose to maintain a policy of non-disclosure. She felt it inappropriate to inform someone of a disease diagnosis before they were ready or able to confront that reality.

A Journey of Discovery through Personal Loss

Joy's husband, Les, passed away in 2015, leaving a profound influence on her journey. What began as an instinctive observation borne from love and care for him transformed into a pioneering research effort that has the potential to change how we approach the diagnosis and treatment of Parkinson's disease.