I saw your first post through kryptokayden- sorry to hear about your daughter- my son Adil is 23 years old and has cerebral palsy- he cannot walk or talk and has seizures- it is a tough life- praying for you all. :-)
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Hello clove71 thank you for visiting my page, i am deeply sorry about your son Adil's condition. with ohtahara syndrome Inah also experience reccuring seizures and pneumonia. Let us both be strong and I will also be praying for you and Adil to have strength to face it all. Thank you :)