Wake at night, cold and wet.
Is this puddle sweat or urine?
Sleep again? Maybe...
Comfort is a chase.
Time to wake, spasms and shakes.
No longer passive, focus on standing.
Arms outstretched, every step, a catch.
Controlled stumble to my goal.
Sight is decent, until the light.
Vision blurs, half my day gone.
Always thirsty. Mouth dry.
Food, hard to choke down.
Joints screech and muscles burn.
I have only begun the day.
Thinking crashes, the fog is thick.
But the pain persists.
Intamacy, now a memory...
And I've slipped.
But I try or I Die. So I try...
A Poem? I wrote for my Personal Thoughts on Living with these symptoms. Word Wizardry is a Fun Art.
This actually made my heart ache @facelessmyth I can’t imagine that kind of reality. You’re very strong and have more character than many I’ve seen blog about their disabilities in the past. Good luck to you sir. I hope technology can break your cycle of pain soon. You deserve so much more. Much love, beautiful words and I wish you all the very best
Thanks for the Kind Words! With the Help of my Wife (whom also is Disabled) we Plan on showing People that Positivity can also exist with Disability. We are working on Video Content that leans Creative Humor. Artist gonna Art. XD
My gramma has MS too, I’ve seen this in person. You’ve done a great job of portraying the struggles in this poem.
Thank You for the Appreciation. Wife has been an Inspiration to Opening Up to my Life with MS.
I get the same reaction some days when I'm having an episode of my Meniere's Disease-off balance, vertigo kicks in... nope, not drunk, not too clumsy- just me being me.
Right?! Just Working with what We have.
Thank you for the welcome to Steemit and for your expression. It's fun to work with words as art and uncover deeper understanding of our experience. I really enjoyed your words and the window it offered into your life. I look forward to reading more of your work!
Thank You! I am Primarily a Visual Artist but I enjoy Words also. Live to Cause Others to Smile.