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RE: Raising Hell with My Sweet Piece of Heaven (and a secret about Gluten!)

in Motherhood2 years ago

People think Autism is Rainman. Autism breaks families, relationships and sometimes even life. The minute you share that a child is totally impossible to handle, you look incompetent and cruel. It drains the spirit and numbs the mind - almost impossible to get through the day. Without experience of the chaos inherent in this situation, empathy fails - this is the crux, it often feels like you’re living in a ball of cotton wool, muffled by trauma, punch drunk 😵 from ordinary daily routine, unable to communicate your own needs, which usually revolve around attempts to assist and understand; and you’re ALONE. Wow, it’s hard! But, if you have discovered something that helps, that’s a miracle. Thanks for the tip
PS: sorry Sam

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Wow... that can only be the voice of experience speaking there 🤗 You get it and you described it so perfectly. Life is still not easy by any means but it has got a damn sight better this past year, and I have real hope for my boy 💞 Going gluten-free seems to have given him a sense of clarity that he was lacking before and this is enabling him to navigate his day to day much easier and he can now see and understand better what is being asked of him at school. Hit me up in DM if you ever want to chat more on this ...do you not ever sleep either? 😉!ALIVE !PIZZA!

No, I don’t sleep. Much love, much ❤️❤️💕

hehe much love to you 💗🤗

@itsostylish! You Are Alive so I just staked 0.1 $ALIVE to your account on behalf of @samsmith1971. (2/10)

The tip has been paid for by the We Are Alive Tribe through the earnings on @alive.chat, feel free to swing by our daily chat any time you want.

oh my gosh!!! i have said this so many times in my life!!!

"people think autism is rainman"

YES.

yes.

THEY HAVE NO OTHER UNDERSTANDING OF IT OUTSIDE OF THAT MOVIE.

and I don't mind the movie - because that was a representation of someone ON the spectrum! Just like the movie about Temple Grandin! Amazing people and that was THEIR story. But people just tried to lump it all together and label them with one broad stroke, and THAT is a huge disservice to the rest of the people on the spectrum!

There are many many different shades of it - and each presents so differently - especially across the gender divide. So many nuances - there is a REASON its called a spectrum disorder! LOLOL

Your comment is beautiful.
Sending a massive hug to you

It feels exactly like this, doesn't it? 😥 And none of us sleep...we try desperately to cling to what time is available in the still and quiet hours of the night to call our own; to have something left for ourselves. Big loves, and I hope Leah's tip helps 💗