I was so breathless today and my fluid gain is not even that high, only 2.5 kilograms. I remember the years when my body can even take seven kilos of fluid before dialysis but I am near paralyzed if I would come to that point because during those days I cannot pay a session and the money only comes from my brother who is just also new to his career as a paper factory plant worker.
Usually I could load up to five kilograms during my "normal body" years.I am that heavy because just for the reason that I am getting a mediocre treatment where the salt isn't taken adequately from my body which leaves me so thirsty, so I drink water and it went on for many years until I switched to a more efficient "filter" with wider holes that can let much more salt plus other bigger molecule compounds like uric acid which actually made me much more to feel better between dialysis sessions.
Now I have more lower capacity to indulge in taking fluids. I can do that if only I can have a frequent dialysis sessions like three times per week which is the advisable thing to do because it makes fewer complications for the patient like fluid overload and cramps to name a few.
I also noticed now that I have gotten much more weaker judging by the way I lift a pail of water which isn't full. I will be 15 years of being a dialysis patient and during my time there is a gradual reduction of my strength until today that my legs cannot much support me anymore despite that I am thin as a kite, I might fly, just add some paper to my body and drag me out to that field and there you go, a cryptopiekite.
Kidding aside, it is not good to even not be able to walk, go out, and enjoy the world. I am now in a position of almost bed-ridden and I am sad about it but I can still see hope when a physician for a parathyroid gland sees me and recommends a surgery, then things could turn into something bright for my life.
How much fluid can you tolerate between treatments now @cryptopie? 22.5 kg is extremely light. I hope that gravy and potato mix is helping.
Sorry @lizzyib it's a typo
What I mean is I can only tolerate 2.5 kilos of water, anything beyond that is I can't breathe anymore.
My body's dry weight weight is only 3.5 to 34 Kg. quite a half of my ideal body weight despite that I am eating normally I can't seem to add some real body weight.
I am now enjoying my gravy and the mash potatoes : P although mother males it lie a gruel sometimes.
Oh ok! 2.5 kg makes a lot more sense to me now lol. I am usually around 1.5 - 2.0 kg gain, depending on whether it's my long break between treatments. I'm not sure what my limit is in terms of toleration because I've never really been really fluid much heavier than 3 kg over on hemo.
Yes it is hard for me now, having a less capacity for a fluid intake leaves me breathless if I get filled up with such a relatively small amount of gain.
That's a terrible feeling @cryptopie. :(
Cryptopiekite: The boy who flew too close to the sun.
Ha ha, yes I am just too emaciated despite of my good appetite.
Fate is just too confused if it would turn me into a Lion. a pigeon, or a kite.
Ha ha, fate's a fickle lover.
It's not all good @ghostcode, I am scared of getting out of bed just to take a toothbrush.
Hopefully with a little help, things could get better or more bearable.
Sometimes I just wanted to die in my sleep but the problem is I am not getting some sleep long enough to die with.
I feel that way too, dying in my sleep would ideal for a peaceful exit. You'd be surprised at how many people just want to call it a day.
take care. i wish you all the best. upvoted and followed.
Thank your @technovedanta for all your support and thoughts.